Patients Allege Mistreatment at Montana Pain Clinic
www.painnewsnetwork.org/stories/2017/5/18/patients-allege-mistreatment-at-montana-pain-clinic
By Pat Anson, Editor
A Montana pain clinic is under fire from patients for abruptly stopping their opioid medication, forcing them to take expensive drug tests, and steering them towards invasive and potentially dangerous procedures.
Some former patients at the Benefis Pain Management Center in Great Falls also allege they have been unfairly labeled as addicts, which has made it difficult for them to find new doctors.
“I’ve never been treated so badly in my life as I have at Benefis, to the point that I terminated my care with them, because I couldn’t do it. I couldn’t be called an addict and a junkie anymore,” says Tami Duncan, a 50-year old woman who suffers from chronic back pain.
“I’m not going back. I am done with them,” says another former patient. “It’s like I was a junkie just looking for my next fix. And that’s not the case at all.”
“You become terrified of who you are going to see next and what they are going to say and do to you,” said a current patient. “The fear of losing my job and not to mention my sanity. The fear that I am going to be labeled an addict if I don’t do what they tell me to.”
“They do not care. They do not know their patients. They do not review the records,” another current patient said. “There is so much more. Billing errors, rarely treated like a person, the wait to see doctors, and then 15 minutes (with them) and you are gone.”
The Benefis pain clinic is part of Benefis Health System, a non-profit community-based health organization that operates a hospital and provides a wide variety of medical services in Great Falls, a city of over 58,000 people in north central Montana. With over 250 physicians and about 3,000 other employees, Benefis is the largest employer in the area outside of government.
“We have some of the finest nurses and Physician Pain Management specialists, with experience second to none. This experience combined with their compassion, provide a tremendous supportive atmosphere. Our pain management team aims to help people reduce and cope with pain,” Benefis says on its website.
Some patients disagree, saying Benefis doctors are quick to label a patient as non-compliant, which has led to patients being discharged from the clinic. In a rural state such as Montana, where options for pain care are limited, that is not a threat to be taken lightly.
“Any questions or requests can be seen as combative. To try and protect ourselves we were recording our appointments. Somehow it was found out and there are now signs everywhere stating no recording or photos,” a patient told PNN.
“We are not allowed to have anyone come into the appointment with us. I am being bounced around to different providers. There is no stability. I am still receiving meds but at a fraction of what they were. To say that I am hurting would be an understatement.”
“Our clinic does not suddenly discontinue opioid prescriptions for patients unless we feel it is unsafe to continue prescribing them,” said Katrina Lewis, MD, a Benefis pain management specialist. “We have patients that have been on pretty high doses of opioids for many years but are not experiencing much relief from pain anymore and their quality of life is suffering significantly.
“We have to do what is medically responsible and safe for our patients. Opioids are incredibly powerful drugs. Given the choice between a patient potentially dying and a patient going into withdrawal, we have to pick withdrawal.”
In an age of opioid hysteria and misleading headlines about an overdose epidemic fueled by painkillers, pain patients around the country – including many who have been stable and compliant on opioid medication for years – are seeing their doses cutback or eliminated. Some have been discharged by doctors who are leery of scrutiny by the DEA and no longer want to treat chronic pain.
What sets the disgruntled patients at Benefis apart from everyone else is that they have formed a support group for each other. And some are speaking out publicly against a provider they feel has shamed and abandoned them. For this story, PNN interviewed over a dozen current and former patients, including some who asked to remain anonymous.
Physician Assistant Fired
Many of the problems at the Benefis pain clinic can be traced back to the firing of Rodney Lutes, a popular 68-year old physician assistant (PA) who – until he was let go — was treating as many as 1,000 pain patients.
“I was thunderstruck. It totally blindsided me. I thought I was doing everything I could for the patients,” says Lutes about his firing in early March.
Lutes was told he was “no longer a good fit” at the clinic and that his position was being eliminated. He believes the real reason was that some of his patients were on high doses of opioids that exceeded clinic policy.
“They didn’t come to me and say, ‘Hey Rod, you need to fall in line here and start reducing these people.’ There was no warning whatsoever,” said Lutes. “The majority of the patients were doing very well. You always have some patients who aren’t doing well and you try to adjust their medications. I had a number of those. But otherwise I felt that the patients were doing very well on the doses they were on.”
“We respect our employees’ privacy rights and consequently cannot comment on the details of Rodney Lutes employment with Benefis,” says Keri Garman, Director of Corporate Communications at Benefis.
There is no record of any disciplinary action against Lutes by Montana’s Board of Medical Examiners. He has been licensed as a PA in the state since 1991.
“He’s compassionate and understanding. I’ve never met anybody else like him in my life,” says Tami Duncan, a patient of Lutes for 20 years. “And Benefis is crucifying that man, along with his patients.”
Duncan was on relatively high doses of oxycodone and MS-Contin for chronic back pain caused by herniated and bulging discs, arthritis and fibromyalgia. She’s also had as many as 60 epidural injections, nerve blocks and other “interventional” procedures, which not only failed to stop her back pain, but may have given her adhesive arachnoiditis, a progressive and chronic inflammation of spinal nerves that she was recently diagnosed with.
“Sometimes it feels like I’m standing in a pot of hot boiling water all day,” says Duncan. The first thing she was told by her new doctor at Benefis was that he was taking her off opioids.
“He comes in and didn’t even look at my files, didn’t even look at my record. And he told me, ‘Well Mrs. Duncan, the game plan is we’re taking you off all your medications and then we’ll terminate your care.’” she recalled. “He didn’t know anything about what was wrong with me. Didn’t know I had nerve conduction tests done to show all the nerve damage I have in both of my legs. He basically came out and said, ‘All you patients all need to go into treatment. You’re addicts.’”
“There are many scenarios that may warrant discontinuation of a particular regimen for the benefit of the patient. Opioids can have many negative side effects for patients,” said Dr. Lewis in a lengthy statement for PNN prepared by Benefis. “We understand that this can be unsettling for patients who have been with a provider for a long period of time and who are accustomed to their care plan.”
Duncan started looking for a new pain doctor and immediately ran into problems. When she visited a pain clinic in her hometown of Havre, she was turned away without an exam or review of her medical records.
“The RN proceeded to tell me that I was a junkie, those are her words, that I was an addict and the only thing that was wrong with me is that I needed to go to treatment,” she said. “I’ve called all over the state trying to find a different pain doctor. Nobody will take me. Benefis has called every doctor in the state of Montana saying not to take any of Lutes’ patients.”
Duncan cites a letter she received from Benefis, which states: “All care providers in our community have been made aware of the changes in our clinic and with what is going on with PA Lutes’ patients.”
“It is our standard practice to send a note to referring physicians within our own health system and community to let them know of changes to the providers practicing in our clinic. The letters never indicate the reason a person is no longer with our organization,” Kathy Hill, Benefis’ Chief Operating Officer said in the statement.
“Community providers had many patients calling with concerns about whether they would be able to get in with a new provider soon enough to avoid a lapse in their medications.
“Whether or not to prescribe opioids to any patient is at the discretion of the provider. Providers were not urged either way.”
‘Nobody Will See Pain Patients’
Regardless of the reason, many former patients of Lutes are having trouble finding new doctors, a not uncommon experience in rural areas where healthcare choices are limited.
“Nobody in Great Falls will see any pain patients. I’m just sitting here in limbo doing nothing but being in pain,” said a former patient who decided to leave Benefis after her opioid medication was stopped. The doctor who replaced Lutes persuaded her to have an epidural, a decision she now regrets.
“They’re forcing everybody to get injections,” says Adrienne Barnoski, another former patient. She and her husband Joseph, who has severe back pain, had been treated by Lutes for years.
“I’m not going to have any injections on my back after what my husband has gone through. It sometimes makes things worse,” she said.
Epidural injections have been used for decades to relieve pain during childbirth, but in recent years injections of a steroid into the epidural space around the spinal cord have increasingly been used to treat back pain. The shots have become a common and sometimes lucrative procedure at pain clinics, where costs vary from as little as $445 to $2,000 per injection. Critics say the injections are risky, overused and often a waste of money.
“An epidural steroid injection is an invasive procedure. It has its risks. And I think a patient always has the right to decline an invasive procedure,” says Lutes. “I’ve had a couple of patients tell me (that they were told) to do epidural steroid injections and if they didn’t do the injections they were no longer going to be prescribed any medications. To me, that’s kind of like blackmail.
“My patients are being treated very, very poorly. It’s horrible. I’ve had calls from patients or their spouses, very concerned the patient was going to commit suicide. It just scares me to death. And these were patients that were functionally doing great. And now they’re being told, sorry, we’re taking your medication away from you.”
Benefis says it does not pressure patients into having invasive procedures, but admits there could have been communication problems between doctors and their patients.
“This is not a policy or an expectation in any way. While we expect patients to be active participants in getting better, there is never a mandatory procedure,” said Nikki Phillips, BSN, Clinic Office Manager at Benefis Neurosciences. “We do our best to care for our patients and regret that this transition has been difficult for some. We realize we have opportunities to improve our communication with patients and will be working on that as a team moving forward.”
“The decision of whether or not to prescribe opioids to a patient is in no way related to their decision to have or not have other interventional procedures,” said Dr. Lewis. “Unfortunately there are some patients who come into the clinic with a preconceived notion that opioids are the answer for them, whether because of past practice within the medical community or other reasons, and overcoming that preconceived notion can be challenging.”
A major challenge for the patients who remain at Benefis is paying for their urine drug tests, which can cost as much as $1,500 and are not always covered by insurance. For the past two years, Benefis has been working with a drug laboratory over 2,000 miles away in Georgia, one with a questionable past and a very uncertain future. More on that tomorrow.
I am not an attorney but this statement “doses of opioids that exceeded clinic policy” suggests that “cookie cutter corporate medicine” is in full effect in this so called “healthcare system”.
This is the type of “one size fits all medicine” is where a class action lawsuit is going to first take place. When administrators and/or executives of a corporation starts basically dictating medical care in this manner.. you can be guaranteed that some/many pts will be harmed. You cannot administratively invalidate the “bell curve” and the individualization of healthcare that every person needs and expects from the prescriber that they have trusted their quality of live and – at times – life itself to.
This sort of corporate medical policy edict would appear on face value that they are attempting to overwrite or supersede the state’s medical practice act which grants the prescriber professional discretion in treating pts.
In the whole medical industry SOP is … “if it is not documented…. it NEVER happened ” so it would appear that this healthcare corporation only wants documentation based on “one point of view” and that would be from the healthcare provider’s perspective. Which is “guided” by “clinic policy” and perhaps fear of continued employment… as RODNEY LUTES, PA recently found out… having to deal with… Benefis is the largest employer in the area outside of government.
I don’t think that it would be much of a push for a law firm to review their pt care policies to easily find out that the “most strict/limiting” are directed at those whose medical conditions require controlled medications and the rest of the pt care policies – if they do exist – have edicts that are more “general” in nature as to treatments and expected pt outcomes.
Since the pts covered by the former policies are covered by either the Americans with Disability Act or/and the Civil Rights Act.. and it would be quite easy to PROVE discrimination… which is a CIVIL RIGHTS violation under those laws.
Filed under: General Problems
We need to have a class action law suit. I would push for that. I’m a DAV.
[…] PA fired: some of his patients were on high doses of opioids that exceeded clinic policy? […]
i am a former patient of Rodney, i want to join whatever lawsuit, support group. there is much to learn about all of the options, not only epidurals but minimally invasive stuff that is approved by fda. yet they steer us, all of us to multi-level fusions, FDA=forever drug addicted and they take that away from people who do get real benefits. now it will be forever device addicted. when you fuse you will need more because adjacent joint syndrome is the only guarantee. https://www.adrsupport.org/forums/index.php
I also wanted to mention that when the new staff was there in April I had to sign 4 pages of what type of medical care I could expect from this so called pain doctor. I had to agree to try PT, OT, any, & all other types of suggestions that they had. Gee, don’t you think all of these have been tried on me at 71, & my disability started at the age of 21? I didn’t actually apply for disability until I was 40 at my PCP’s suggestion as my bones were starting to shatter. If I didn’t sign these so called suggestions or rules as they called them, I was never to receive another appointment or treatment from this clinic! Just unbelievable. I even took with me all my medical records verifying all my conditions, & they wouldn’t even look at them. They also wouldn’t give me a copy of the so called FDA ruling that had just been signed stating that patients could not take oxycodone with alprazalom. Steve gave me the Beers report because it isn’t an FDA signed condition for treatment. Treat us as individuals! I also have a copy of Iowas Joint Statement on Pain by the Iowa Board of Medical, Nursing, Pharmacy and Physican Assistants which states they have to treat a persons pain in an appropriate way even if that includes opiate medication, & that they shall not be at risk of disciplinary action from their respective licensing board for prescribing, dispensing or administering controlled substances, including opioid analgesics, for a legitimate medical purpose based on accepted scientific knowledge, sound clinical judgment, and adequate documentation. Yeah RIGHT!
This same situation has happened to me at The Pain Center of Iowa. I went in for my 3 month visit in April, had a new nurse, & when she had checked my BP, she then asked for my bottle of pills so she could count them to make sure I wasn’t taking more than I should be. She then reprimanded me for being 12 short! I keep mine locked in a safe at home, but take out a couple of days at a time. She then told me “Brandy” would be in shortly. I asked who Brandy was, & why Sarah my old PA wasn’t there to see me. I was told everyone who had worked there no longer was there except the doctor who I have only seen 2 times in 6 years! I was told I would see them every 28 days, & be drug tested every time. My script was due in the middle of the month so she wrote one to fill in the gap between appointments to even it out, but she also typed in it was for 28 days. If I had filled it, I couldn’t get another for 28 days again leaving me 15 days short with NO meds! Several calls which weren’t returned for 2 days which left me without any pills, & they finally got it straitened out. This was on my May visit, which I was also told that I could no longer take alprazolam with oxycodone. If I did fill the alprazolam which my PCP writes because I have MS, & a brain problem in the sleep area which does not let me sleep at all. The month of April I only slept 9 1/2 hours the whole month! In May at my visit I was told I could fill the alprazolam, but I had to wean off of the oxycodone. I need the sleep so badly I had to agree with them to wean off of the oxycodone. I have so many physical problems, & also am one of those people that have no pain receptors at all. This has been proven by MRI’s of my brain & spine. I had a really messed up back surgery in 1971, & another in 1980 to try to fix the mess the first doctor did to my back. I also have scoliosis, spinal hemangiomas, a tumor in my lower spine, severe osteoarthritis, osteoporosis with many broken bones, & kyposis. Their answer was a spinal cord stimulator. Yeah right! This anestesiologist actually went back to school to learn to put these in himself. I have had 5 or 6 neurosurgeons tell me that it would not help me, plus any surgery to my spine would paralyze me. This situation with these pain clinics is getting ridiculous! My PCP wanted me to continue With the alprazolam, but telling him they would immediately stop the oxycodone, we tried trazadone which did not help with the sleep issue at all. So far I am doing OK with dropping the one pill a day, but not sure what will happen when they drop more. I have tried so hard to work with getting something done about this DEA/FDA situation even going as far as having a petition on MoveOn.org named Chronic Patients vs the DEA, & putting it all over face book. It was to be delivered to Congress & President Obama, but I figure it was put on the bottom of the pile, & never read. At last count there were about 2,000 signatures. People are afraid to speak out because they are so afraid to lose what medicine they now get, but we have to hang together folks. People are suffering because they are losing their meds that help them function just like me. I am 71 years old, & have a bedridden husband whom I have to take care of full time, plus responsible for the entire care of our home etc… It’s going to very hard to do when I can’t even walk anymore, or be in a wheelchair myself. This is wrong in so many ways for the powers that be lump us together with the addicts that re killing themselves. The reason I believe that there are so many OD’s on heroin, are the chronic pain patients that have been cut off by their doctors are experimenting with the street drugs to help with their pain that no one will treat! I am not surprised that this is happening all over the country now. We need to band together to fight this horrendous new policy being instituted everywhere. Thank you for listening.