FDA is on our side they need to to have a better head count and understand this is millions not thousands as a recent paper reported
also they need to know other drugs are being abruptly tapered
maybe you could spread the word?
i think this would work:
info@fda.gov as a portal
brief messages:
- name, state, phone number (so they can verify) I trust them
- pick one disease
- was tapered off without consent when list all meds tapered
one paragraph mainly want then to count the replies and list the other drugs being tapered
ideas for other groups to contact?
what do you thinks
Filed under: General Problems
Is it just me, or is the “pick one disease” sort of aggravating? Maybe it’s because my laundry list of problems can be dismissed as not being “real” (not like EDS, or arachnoiditis from a botched surgery or ESI). But they sure add up to an awful pain problem. And my benighted state (Oregon) has decided that most of them must NOT be mixed with opioids under ANY circumstances anyway. I realize that a page of medical history won’t be read, but…how to pick the worst problem? They trade off so I almost never have a decent day.