I was involved in on this “remotely” via phone with Bob & Johanna who were there in person. Any time that Bob runs into a medication question when he is advocating… my phone rings. I am more than happy to provide Bob with the “factual ammunition” in advocating for a pt. Apparently this practitioner is JUST AN EMPLOYEE OF VANDERBILT HOSPITAL… and if he was concerned about liabilities – he shouldn’t have become a physician… I suspect that VANDERBILT is another large hospital corporation that has adopted a “little/no opiate” policy. The medication that this kid was on previously was not doing a very good job on reducing their pain and there is NO RECOMMENDATION FOR DOSES FOR KIDS… and this physician wanted to take the kid off of a opiate – that I had previously recommended – that was reducing their pain and improving their QOL and giving the FAMILY more quality time together, with what time that the kid has left.
I know that if a parent INTENTIONALLY inflicted as much pain on one of their kids , as this kid was going to experience if he was put back on the medication that was not working well for them… Child Protective Services would be knocking at their door. Isn’t it amazing in our society that health care practitioners can INTENTIONALLY inflict pain on a pt – by taking away or lowering their pain meds – and NO ONE IS IN TROUBLE…. EXCEPT THE PT HAVING TO EXIST IN PAIN.
Maybe it is time that the chronic pain community start using LAW FIRMS to advocate for us
APDF learned yesterday if you spank your kid the government will punish you! But It’s entirely ok for the government to torture your child (Guantanamo Bay style) if they are suffering from rare diseases or end of life issues! Then the idea was to change the child from a schedule 2 that has reported to be working to a schedule 4 when the child only has 3 to 6 months left to live. Then he proceeded to tell us his liabilities and hospital policies! Then he spread his God like knowledge upon us like we were in kindergarten! Well that backfired when he met the KING OF ARGUMENTS! I may let Amanda win from time to time but he ain’t Amanda! At the end of the day we let it known that child services and an attorney will be contacted and paid for by American Pain And Disability Foundation and not to mention having several picketing signs outside his beautiful home and hospital establishment.. they decided to leave the child on the current medication that was previously agreed to from a previous appointment as long as I wasn’t allowed back to Advocate for said child any longer I told the mom make the deal and if they go back on it…. we will be back. Deals a deal right? Oh and he also said,” something about F###ing a##hole before leaving abruptly! After all we aren’t looking for credit but I’ll be damned if we were gonna let that impede my other 14 children and start a new ”policy” especially at Vanderbilt Children’s Hospital where we have worked so hard and it would spread like wildfire! Anyways we also went to Methodist Hospital were we were successful in helping the last of the 15 children get end of life care and a special thank you to Methodist Hospital for stepping up for these kids! A special thank you goes out to Methodist Hospital & Johnna Magers and Steve Ariens and the rest of the APDF team for taking up your whole day! You are truly Amazing people! I was home about 3 minutes before I passed out from 6pm to 5 am and thank God because obviously my old beat up ass body was ready for that! OH and 14-1 is not a bad Advocating record for a bunch of pain patients with bad attitudes but with alot of knowledge more thank yous go out to all the folks who helped along the way Andrew Hohenthaner Carol Adams Dr Anthony Mimms Shirley Buck Stacy Siano Ashley Michel Karlyn Beavers Karen Wilkinson & Cheri Mendes for awesome articles…. Thank You!
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THANK U,,TO ALL,,WHO TRULY HELP THIS INNOCENT CHILD,,AS U KNOW ALREADY,,YOUR WORK IS OBVIOUSLY ESSENTIAL,,,,WHEN THIER COMMING FOR MEDICALLY ILL CHILDREN,,,,,FOR ME,,IT SHOWS THE TRUE GREAT,MORAL CHARACTER OF ALL INVOLVED,WHO CHOOSE TO HELP,,,,COULDN’T STAND BY AND WATCH THE MEDICAL TORTURE OF A CHILD.,,,EXSPECIALLY THE CHILD,,,HE/SHE WILL NEVER FORGET THIS ACT OF HUMANE COMPASSIONATE CARE FROM THOSE HE WILL NEVER REALLY .jmo,,,maryw
I just ran into the same line,from a physician who is chosen to retire early,and I quote him,”Mary see,all these hospitals are now run by corproation,corporation that do not give a dam about the patient,only about the bottum line,$$$$,,Doctor no-longer work out of lone independent office w/their own practices,to much government interfrence,soo,they work for the hospitals,have their offices in the hospitals,,but all the hospitals’ are just corporation,it is no-longer about the patient’s wellbeing,”’unquote,,,maryw