Daphne Bramham: Is assisted death the best we can offer chronic pain sufferers?
http://nationalpaincentre.mcmaster.ca/opioid/ released May 2016
https://www.cdc.gov/mmwr/volumes/65/rr/rr6501e1.htm released March 2016
Is it just me.. but.. for CDC and the Canadian opiate dosing guidelines were released a COUPLE OF MONTHS APART..
Could it have been some “cooperation” – or COLLUSION between the agencies in each country to come up with similar guidelines…. WITHIN WEEKS of each other ?
Also strange that in the Canadian guideline for assisted suicide requires that:
a grievous and irremediable medical condition” and that applicants have been informed of “the means that are available to relieve their suffering, including palliative care.”
So in this particular case… is the limiting/withholding opiates from a pt… INTENTIONALLY creating a grievous and irremediable medical condition which would qualify the pt to be eligible to be granted to “permission by the bureaucracy” to commit suicide.. which is normally considered a CRIME… Also since Canada has a “national health system”.. could this be a result of saving the system untold amounts of money in treating such a pts with high acuity or expensive care ?
At age 72, he’s endured more than 20 years of chronic pain punctuated by excruciating, breakthrough pain. For the past four years, it’s been mostly tolerable after extensive spinal surgery and with daily doses of opioids.
Until now.
After waiting for a year to be accepted as a patient at one of the province’s very few specialized pain clinics, he now goes every three months to have his condition and treatment reassessed. But in the interim period, if something changes and his suffering spikes beyond what’s controlled by hydromorphine and Tylenol 3, his general practitioner will no longer prescribe any extra pills.
Even emergency room doctors have been reluctant to administer more opiates after a few bad falls that recently have driven him to hospital desperate and writhing in agony.
So a few weeks ago this Lower Mainland man went searching for information on whether he would qualify for medically assisted death.
“I can’t imagine living without him,” says his wife of nearly 52 years, who is angry and frustrated. But from her front-row seat to his misery, the retired nurse also can’t imagine how her husband can stand much more.
He declined to speak to me, preferring that his wife speak for him. At their request, the couple’s names are not being used to protect both their privacy and that of the physicians treating him. The couple is wary of attracting any further attention from the B.C. College of Physicians and Surgeons. His physician — whom they describe as “knowledgeable and compassionate” — received a warning letter from the college last fall after ordering more Tylenol 3 to combat an acute episode.
Last year, in the wake of rising deaths from drugs containing illicit fentanyl, the college set enforceable standards for opioid prescriptions with penalties that include stripping doctors of their licences and a maximum fine of $100,000.
The college emphasizes that those penalties have never been imposed. But few physicians are willing to risk being the first.
After years of having his agony controlled to a bearable level that allowed him to lead a relatively normal life, the Metro Vancouver man no longer believes that’s going to be possible.
“Sometimes the pain is excruciating and still tolerable,” his wife said in a telephone interview. “But every time it gets really bad, he says, ‘I can’t do this any more.’ ”
A few weeks ago, he was walking with a cane. Now, she said, “there is no sign it is letting up. Sometimes he has a few pain-free hours, but the doctor has already reduced the opiate, hoping the lesser dose will be enough. It’s not.”
Putting weight on his leg causes excruciating suffering, so he now uses a wheelchair. That’s stripped him of independence.
Even getting prescriptions refilled would be very difficult if his wife weren’t able to do that for him. Again, as part of the war against opioid overprescription, opioid prescriptions are only refilled when all of the pills from the previous script are used up.
By some definitions, this man is an addict. But he’s not out searching for a high. He needs drugs to simply endure and function.
The drug-dependency isn’t because he’s seeking the simplest option. For years, the couple were volunteer trainers at chronic disease self-management workshops and chronic pain workshops, helping others seek out every option imaginable to mitigate pain.
But now, he’s seen his options as having dwindled down to one: assisted suicide.
“He’s very serious about it,” his wife said. He’s got the phone number of someone who might help. But as far she knows, he has not yet used it to find out whether he would meet the five criteria set out in Canada’s 2016 law that legalized medically assisted death.
But she expects him to do it any day now.
Among the assisted dying law’s criteria are that two physicians and/or nurse practitioners must confirm that the person suffers from “a grievous and irremediable medical condition” and that applicants have been informed of “the means that are available to relieve their suffering, including palliative care.”
Ironic, isn’t it? It’s precisely because no one seems willing to relieve his suffering that the 72-year-old is contemplating assisted death.
It’s a contradiction not lost on his wife.
She’s incredulous that treatment for chronic pain sufferers is stuck in the dark ages, or at very least stuck in the era when even cancer patients were left untreated in excruciating pain because of the concern that administering more opioids might result in addiction.
That era, mercifully, has ended for cancer patients and others nearing the end of life. Pain control is the primary focus of compassionate care provided by hospices and palliative care units.
As this poor man’s wife so eloquently said: “We’re helping people to die just beautifully. We’re just not helping them to live.”
Filed under: General Problems
The time was rite 5 YEARS Ago,,with the very 1 st death due to forced endurement of physical pain,,,its not IF your medicine will be take or lessen’d to ineffective dosage,,,,it is WHEN your medicine will be taken,,,mary
We can’t seem to get ourselves on track to start petitions , gather in places is hard because we have so much pain. We just have to keep after it. Someday we will be ready to voice our opinion and stand together. This takes time but when the time is right we will move and take back our rights as human beings.those who win just keep trying they will make it.
My heart goes out to my friends in pain. Their crys are shaking the heavens.
Sandrag
Either most humans believe they are immune to ever being in chronic pain, or they are not informed of what the current “rules”, “guidelines”, are for pain mgt care, the fact is that almost everyone will be confronted and effected by this. There are power in #s; we need to post, inform, create petitions, before it’s too late, and while having ability to make a difference. The bottom line is:, this is Not about Addiction, overdose, ect. This IS ABUSE by Government, and those given authority to destroy and eliminate lives.
It’s about Flaunting Power Over People and at the most basic level-HUMAN PAIN AND SUFFERING, which is/can be UNNECESSARY. Just the Fear, Terror, and contemplation alone Screams ABUSE, CONTROL, THREATS.
NO ONE person, president, public health, world Health, Corporation, should have this Authority OVER ANY PERSON, Animal….EVER!
There shouldn’t be this discussion-PERIOD. WE know after having to analyze, consider, reconsider, over & over again-that this is NOT ABOUT “HEALTH”, CARE, COMPASSION at all. It’s a relentless set of painful, pain-inspiring, thought-provoking pain, and stupid non-reasons. The only option on this subject is to Take Away Power, and Authority to PREVENT this from continuing to happen at all.
Amen,,,like i mentioned earlier,,it needs to be implamented that it is a FEDERAL CRIME OF TORTURE,,IF ANY GOVERNMENT AGENCY REDUCES ITS CITIZENS,,,DOCTORS AND PATIENTS,,TO ABSOLUTE DESPOTISM,,,CONCERNING EFFECTIVE USE OF MEDICINES TO LESSEEN PHYSICAL PAIN,,,,IE,,,FEDERAL CRIME OF TORTURE IS DEFINED AS FORCED ENDUREMENT OF PHYSICAL PAIN CAUSED BY OUR GOVERNMENTS INEPT POLICIES AND REGULATIONS,AND UNLAWFUL USE OF JUST POWER DERIVED FROM THE GOVERNED,,,maryw
This is exactly what i was just told,,,”TOUGH;” if i throw up my meds from diagnosed pancreatitis,ga,llbladder calcified,ie gravel pit,and internal organs BADLY beaten up from a 15 year MISDIAGNOSES,, tough,PANCREATITIS DUCTYS AND BILE DUCTYS PERMANATLY DAMAGE IE SWELLING TO CLOSURE,,,,,if i throw up my meds,,,,,tough if my start time WAS 3 am for my medicineds,,,tough if my mailed prescription is 11 days LATE,,,TOUGH,,,TOUGH IF I HAVE 5 CYST SITTING IN MY LOWER SPINAL CORD,,,,,u know we all get woken up from our physical pain,,,sooo,,,i pray to god thee aclu pick up our case,,,,,,maybe if others pray it might help,,,DESPOTISM willfully created by our government calls for desperate measures,,,,THEIR WILLFULLY COMMITTING TORTURE AND GENOCIDE ONTO THE MEDICALLY ILL,,MARY
This Era of criminalizing pain patients and their docs will be looked back on as the dark ages of modern medical treatment of pain. Pain patients are willing to kill themselves because they can no longer use the only medication that helps them do normal things like working and being active in our lives. And, pain patients are being taken off their pain meds cold turkey. That’s insane. It’s medical malpractice. If insurance paid for alternative methods of pain treatment, such as accupuncture, meditation classes, physical therapy, holistic remedies, nutrition information to help with inflamation, including herbs, chiropractic care, then we could avail ourselves of these alternative methods first, and if they don’t work, pain meds can save us from a
life of misery. As a woman who developed fibromyalgia over 30 years ago, I tried alternative methods until I ran out of money, nothing helped. And I had a graduate degree in Nutrition. I tried all the above alternative modalities to heal my body, and when they didn’t work, I turned to pain medication reluctantly. Pain meds gave me enough relief that I was able to participate in life, but they haven’t brought me back to pre-fibromyalgia. But without pain meds, I am homebound. CDC is killing people who have no one to step up for us, with the exception of the writer of this column, pharmacist Steve. Bless you.
Palliative care can and often does make the difference in life or death but for it to mean life they have to throw those useless guidelines out the window! It’s heartbreaking!