The little lady in the video below is just 14 y/o and has been thru 54 different surgical procedures since she has been born. That is 3-4 surgical procedure EVERY YEAR.
She is dealing with a handful of different health issues, each can be substantial pain generators, Chiari Malformation, EDS, Adhesive Arachnoiditis, Tethered Cord Syndrome, Syringomyelia, Mast Cell Activation Syndrome, CSF leaks and lives with 10/10 pain in her head and back everyday. She also walks with a cane as she can’t bare weight on her left leg without it giving out.
Emmalyn’s neurosurgeon has recommended that she go to the Spero Clinic in Arkansas. After so many surgeries, her central nervous system needs to be reset, working in getting her walking again and hopefully getting her pain somewhat better! They will not be taking any pain meds away! Unless she is doing better. This is a very aggressive program to help with all of the above.
Emmalyn is on Arkansas’ Medicaid and Medicaid has so many hoops and hurdles to get them to approve paying for her to be seen by the Spero Clinic, and the clinic program is 3+ intensive months. They have so many slots, because they have pts dealing with rare/complex diseases coming to them, from all over the world.
American Pain and Disability Foundation was able to help raise the $2,500 down payment. To reserve her a slot in the first quarter of 2024. But she needs another $55,000 to pay upfront to be able to receive her needed therapy at Spero clinic, and the cost for the family because they will have to move to Arkansas while she is in therapy.
I remember when I was 14 y/0, a Freshman year in High School. Getting to enjoy football & basketball games, sock hops, and many other new kids in my universe, some I will become friends with. A few years later would get to go to Jr/Sr Prom and all the activities in between. The Spero clinic may be Emmalyn’s best shot to her day to day life closer to what her teenage years should be like. Maybe she can walk away from her cane, walker and wheelchair and get along with her life.
Please consider donating https://www.gofundme.com/f/emmalyns-journey and sharing to help us reach her goal. Thank you for your kindness and support.
#EmmalynsJourney
https://www.gofundme.com/f/emmalyns-journey
Filed under: General Problems
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