Lilly documented her journey through the medical system and it took me a long time before I could even look through things without going to pieces! Fun fact is mostly Stacey but Lilly too both worshipped Steve Ariens & read every article he ever wrote 
Steve just said, they just have good taste as Steve played no small roll in their care! Stacey and Lilly both have passed and were best friends and after Stacey’s brain surgery she got a horrible infection and Lilly did her hair and nails while her scalp was an open wound & in a medical coma! Both died of brain cancer! These 2 girls stole my heart and also lead to alot of phone calls because they caused trouble at Vanderbilt Children’s Hospital I’m trying to get her small documentary out but I can only do small pieces at a time 
! The anniversary of their deaths is slowly approaching and I always get grouchy and think what a waste of 2 fine child advocates 
This year I hope I have Lilly and Stacey’s story out so folks can understand what children in pain go through! These 2 wonderful human beings should never be forgotten and their steadfast dedication to helping other small children should never be forgotten! These 2 kids taught me more in 2 years than one can learn in a lifetime! 
One thing they did give me is hope our younger generation can bring an end to this madness!
Bob Sheerin
Child Advocate
American Pain and Disability Foundation
To help other child like Lilly and Stacey donate to
Www.4apdf.org
Filed under: General Problems
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