Terry called me and he is doing research to generate a report/story on – whatever number he can validate – the number/names of chronic pain pts that have committed suicide because their meds have been reduced or stopped since the CDC released their opiate dosing guidelines two years ago. If you have information please contact him
Terrence McCoy
Washington Post
Reporter
202-334-5215
https://www.washingtonpost.com/people/terrence-mccoy/
Filed under: General Problems
I have been forced to go to pain management since new laws( that keep coming) have went into effect. You are made to feel like a criminal and scared for your Dr getting shut down. My Dr has had his office raided and patients records taken by the D E A . I thought hippa law forbade anyone to have your medical records without your concent. Personally I do not know anyone that has killed themselves from not having their medication but I can see it coming. Unless you are in constant pain you don’t understand it. And If your not in constant pain you shouldn’t judge a person.
I cant believe the staggering amount of accounts I’ve read here.Word for word they duplicate my same experiences!!I am facing a hip replce,been warned I could maybe have breast cancer,62 yrs.and been on SSDI for 5yrs.well I have my share of pain!!I have been the whole route with cvs,Walgreens,mom n pop stores,on and on.My ONLY source for my meds has been Optum RX[mail order]and they are not exactly ‘organized’but they are trying andyou dont get the 3rd degree from em.With United Healthcare it is the ONLY option.And I am too bad a condition to go all over town to be lied to,etc.Publix is the ony one that’s treated me with dignity,however,I was told they are only allowed a certain amount of opiods monthly,and its 1st come,1st served,after that.sorry….also was told if there’s not enuf to fill script,the balace cant be backordered,you just have to forfeit them.I notice narcotics are the ONLY eds with this policy??.Yet every nite on the tv news,I see ads for lawyrrs asking for men who have contracted skin cancer for taking popular hard-on pills like Viagra aND cIALIS!!what???if that is true,w here is the uproar over that?My life is not my own,it was bought with a price[The Blood of Jesus]But I have honestly considered ending it cuz the pain wont stop.In my youth,I was a proffesional surfer and outrigger canoe racer!What a paradox…..Please pray for me,anyone,and I promise to pray for all fellow sufferers I have read about here,God have mercy also on the liars andabusers who have put honest people in this situation.All comments are welcomed.Chist Be with you when you wake at 3am in misery…How well I know that feeling….. i
“In June of 2017 my wife had some strange symptoms.” https://medium.com/@jamesperry6249/in-june-of-2017-my-wife-had-some-strange-symptoms-32d2dd2636dc
Thank you so much for giving pain pts a voice and a chance to tell our side!! Email sent!! I’ve been a cpp for 17 yrs. Been thru all alternative
Therapies such as years of physical therapy, massage, chiro, accupuncture, TENS, OTC and Nsaids that tore my stomach and liver up, discetomies, discographies, water therapy, nerves burned, exercise, eating healthy, herbal, steriods, hundreds and hundreds of facet injections, trigger point injections and SI joint injections that do not work, epidurals that caused me adhesive arachnoiditis, 2 failed spinal fusions that left me with severe nerve damage and more Opiods were the LAST RESORT and once I was on the right doses that worked for me I HAD A QUALITY OF LIFE! Then the corrupt government and company step in and my dr of 6yrs dropped me like garbage!! LEFT IN AGONY! !! THIS IS #INHUMANE, #CRUEL #TORTURE! ! #SILENTNOMORE #SHAREOURPAIN #WER1 #SUICIDEDUE2PAIN #PAINPATIENTS #GENOCIDE
Sharing to my blog and its social media linked accounts – the targeting of pain patients by the CDC is unconscionable in the extreme.
I find it appalling that there was so little reaction (outside of the pain community and advocates) to the admission “faulty data” was deliberately used to inflate the number of opiod related deaths and rejection of studies that contradicted the CDC’s spin (some of which were studies requested by the CDC, ironically) to justify the reasoning behind the “guidelines.”
Very few people (actually, one) other than my family and friends in the pain community reacted, shared, or commented on a single post or article on the topic.
And as obviously biased as the CDC guidelines and rhetoric are, few outside of pain patients and advocates seem to think they’re unreasonable, and sadly, that didn’t surprise me. The CDC played on the already existing stigma against chronic pain patients, doctors as pill pushers, and opiods, putting forth opinion, bias, and manipulated data as fact.
The main focus shifted from being about heroin deaths to being about doctors “over-treating” chronic pain to being about opiods as “gateway drugs” and regimenting opiod prescribing to pain patients for our own good, because we obviously didn’t know “opiods aren’t effective for long term pain management,” ALWAYS lead to addiction, and that we need to stop treating our pain and just learn “pain acceptance.”
Enter the War On Pain Patients as the solution to the War On The Heroin/Opiate Overdose Epidemic.
And it worked, as I suspected it would, despite my hopes for better. I’ve had relatively fewer years of battling 24/7 unrelenting pain (6 years) compared to a number of y’all in this fight. I remember having no concept of such a life and no real opinion other than it wasn’t my place to have one about it. I definitely didn’t notice support pages or posts – I was surprised to find support pages existed a year into becoming a member of the Pain Population. I didn’t know several friends had chronic pain until I began talking about my own openly.
Many people without chronic pain don’t see our reality and are content not to; they aren’t invested in us or the outcome and don’t think of the possibility they could someday be in our shoes.
Falsifications and exaggerated statistics aren’t likely to be challenged by people who don’t have a clue that they’re out of the ballpark. They don’t have a real grasp of what ballpark the game is in – and those people calling for a fair call from the umpire? Probably just mad became theyre on the losing team; sour grapes. The people in charge are respectable officials with all the info, they’re probably making the right call.
Funny that government organizations are not trusted by so many…until it comes to a well hyped issue that suits one’s preconceived notions about something they don’t approve of or vaguely distrust, like all these sore losers not being able to get their drugs. But if it stops this opioid epidemic, isn’t the payoff worth some people have to tough out a little more pain?
And that’s the OTHER problem with the “guidelines”: they don’t do a thing to help addicts or prevent overdose deaths, either.
What they do is hurt one group in the name of saving the other.
What they do is lead desperate and hopeless pain patients to desperate and permanent solutions.
What they do is ignore that now suicides among pain patients are rising due to untreated or undertreated severe pain…while illicit opiod/heroin overdose deaths are not significantly affected.
Dear Anonymous, I don’t know what your pain condition is and I can’t live without Fentanyl due to my CRPS/RSD, so I have contemplated the same thing. I want you to know how my heart breaks for you and your suffering! I don’t know if you are a believer but there is no sin that can’t be forgiven by God except one, and that is rejecting the Holy Spirit.
If you can’t live anymore because of your agony, do one last thing and tell God you realize you are not perfect and holy like He is, and that like each and every one of us you have missed the mark of His perfection. Ask Him to forgive you and tell Him you believe that He sent His son Jesus to take on Himself every time you missed the mark of holiness, and paid the price for it. Believe what you are telling Him and ask Him to receive you to where He is. He loves you so much and wants you to be with Him.
Thank you so much for doing this! I have been working since Oct 8, 2011 on a website The Faces of Ankylosing Spondylitis where people are coming together to raise awareness for people who live with chronic pain.
Ok
I will
I am a victim! However, I cannot comment about anything other than, I may or may not be here tomorrow…even tonight.
THANK YOU,,mary