My blog is now in its EIGHTH YEAR
Nearly every day I check “Memories” that FB posts on my page… and I see names of people who have “liked” my page and/or started following me… and many of the names I don’t have a clue who they are or they never interact with my FB page at all.
I se
e the same couple of dozen people posting on FB and I notice that many people “like” the comment but few SHARE… or I see the same person posting the same thing on multiple FB pages… Nothing makes me more happy than go thru FB notices to only find the same post over and over from the same person. To “like” a comment only allows FB to collect data points on you for their database… that they are selling to anyone who wants to put up the money.
Does this suggest that we have TOO MANY FB pages devoted to trying to deal with pain ?
Many of these FB groups are “CLOSED/PRIVATE” and they made a post and suggest that it be SHARED….YOU CAN’T SHARE FROM A CLOSED GROUP !!!
One chronic painer asked me the other night if we should post something about supporting some doc that is getting drug thru the DEA swamp… and my immediate response is why aren’t the doctors financially supporting the defense of their colleagues ?
It has been stated that there are some 100 million chronic pain pts and that 80% are struggling financially because of their inability to work, the other spouse took off and/or the cost of their therapy.
So does that mean that there is 20% of the chronic pain pts may have a few dollars to spare… that would be 20 million ? I see on TV a lot of non profit groups asking for JUST $19/month for their cause… Doesn’t anyone realize just what JUST $10/month from 20 million could do for a legal defense fund ?
Start hiring a PR firm, Lobbyists and law firms to get the message out that our government is actively participating in a covert genocide and suiting those healthcare corporations that are supporting this genocide.
With our ingrained TWO PARTY SYSTEM… it would seem that if the current “BUM” is voted out… his/her replace is or becomes the NEW BUM. According to this https://www.washingtonpost.com/news/wonk/wp/2017/04/14/somebody-just-put-a-price-tag-on-the-2016-election-its-a-doozy/ the total Federal 2016 election – all candidates was 6.5 BILLION.
There are other political parties besides Democrats and Republicans and it only takes about 65 million votes to get a person elected President… abt HALF the number claimed chronic pain pts… not counting their spouses and kids old enough to vote.
IMO… the chronic pain community needs to get their act together… that includes their dollars and their votes… In the EIGHT YEARS of my blog.. things have not gotten any better and in reality probably got a lot worse and we are near the end… because many of you are still breathing and having the healthcare system spend money on your treatments.
Get you head out of the sand and quit all the whining… bitching .. and moaning…
Filed under: General Problems
How many CPP’s are willing to throw other CPP’s under the bus just because we don’t support doctors in this? Who’s more important CPP’s or doctors because they are the one’s making this choice. So I guess I should go crawl in a hole and die while doctors get to ride on the money and death of CPP’s.
You asked the million dollar question: Why aren’t doctors stepping up and supporting each other? I feel horrible about the innocent doctors that are being harmed but I feel worse for CPP’s!! I will not support any group that supports doctors. Where were they for us? Now they want to jump in with us and I won’t be a part of (that). I’ve been blocked from those groups that support doctors, how many others are there like me that will be left out in these doctor/pain patient groups? Doctors are able to still harm CPP’s by their actions of blocking those that don’t agree or support them. I won’t allow this and will fight it.
I have been fighting my forced med reduction for over a year now. I have contacted everyone I can think of from my congressional reps to lawyers, the FDA, disability law center, and the ACLU. I have gotten nothing back other than refusals to help. Therefore, I think that there should be some recognition of the fact that there are many of us chronic pain patients fighting in every way we can to retain our stable dosage of medication, but no agency, commission, lawyer, etc. wants to get embroiled in what is still considered a controversial issue.
I’ve donated so many times to so many people I wonder if I wasted my money?
Amen to that brother Steve! there was a point I was almost done, I put a lot of stuff out on social media, and there ain’t nothing worse than getting a bunch of likes and no shares. I run into several people at grocery stores, and have family members that are pain patients that all they want to do is whine. I was surprised we only had 9,000 people write HHS. Given the fact most chronic pain patients are older, it seems like they would understand there’s power in numbers. I had to give up my career over a decade ago, I’ve lost everything to medical bills, I’m on SSD. I’d gladly give up 25 bucks a month to a legal defense fund. frankly, I just don’t get it.
I truly do appreciate what you’re doing for a Steve, THANK YOU!
Absolutely True! I totally agree with you!
You know I always share your postings too.
Definately need UNITY.
There’s not one magic person who’s going to be able to change this MESS around.
Hear Hear!
And Thank you Steve.
Until we get organized and begin presenting one large and very powerful front, nothing will change.
Thanks
Exactly, Steve. You are a beacon in the dark for sticking this out for 8 years! I thought when I started the fight 3 years ago, that we would have things ended within the year. But few people have taken ideas that will make a difference. Instead, they chase rabbits.
But for those reading this post, and the comments, if you want to be a part of real change, join the doctors (and patients) ofcourage communication campaign. Webinars every Monday night at 8PM ET. Link is https://join.me/sevenpillars.
Get out of the box and start thinking and acting, people. It CAN be done, but it takes working together.
AMEN! Thank you for pointing this out! I have been saying it for a while now, if we don’t get our act together, we will lose! No action means that we will never be heard! I would personally give up an entire year of my salary if I thought it would bring about change. Unfortunately, it takes more time one!
Well I didnt know you had a FB Page My bad I have been saying exactly what you stated about a fund so these Drs being railroaded by the DEA can hire a defence team to fight for them..It seems it falls on deaf ears..I stated if every C.P.P. donated $1.00 ONE DOLLAR that would be $100 million Dollars!! The Lawyers would be begging to defend..Even if we got half $50 MILLION…Sometimes when you put stuff out there like this you wonder how many really are C.P.P……..