WOW! Great information Steve and thank you so much for putting it out there. We just didn’t know who or what to do until we read your article. My wife has AIP which is acute intermittent Porphyria. 15 years ago she was perscribed Oxycoton, which she had to be talked into. Long story short it works and she has a life BUT every month it is a fight to get her prescription filled. In fact I am the one who has to take it in because she has been treated like a common street drug addict.
We have had to cancel our vacations due to getting her meds filled on the 30th day.
They will not fill ONE day early. We know the bad stories of this medicine and everything and how addictive it is but the addiction is nothing compared to the the pain of Porphyria. I have had a pharmacist tell me I need to get my wife off this med as no decease is worth the addiction. I could go on and on but I won’t take up anymore of your time.
We are in our 60’s and we want to enjoy our retirement.
We want to thank you from the bottom of our hearts for giving us the information we have been looking for for so many years.
Here is a link to find a independent pharmacy by zip code http://www.ncpanet.org/home/find-your-local-pharmacy
Filed under: General Problems
No disease is worth ADDICTION?! They might as well have said, “If your wife dies because she can’t handle the pain anymore and takes her own life or has a major health event that claims her life, at least she won’t die a junkie.” These people need to wisen up and stop parroting the misinformation being passed around. Who in their right mind would mindlessly believes something they were told without bothering to find out for themselves. Or even worse, knows better but wants YOU to believe it. There is plenty of evidence out there that directly contradicts the stereotype that if you take pain medication, you’ll definitely become an addict!!! Next thing you know, we will be seeing billboards with crying children on them saying “Pain medication, not even ONCE”. Better to suffer with a disease than become an addict. If that ever happens again, I think I’d have to say “At least addiction has an acceptable form of treatment that serves to alleviate it’s symptons with wonderful success. I think my wife and I will take our chances so that she doesn’t have to suffer from the pain of her disease for the rest of her life, but thanks for your concern.” Listening to someone speak out of willful ignorance is insanely irritating to me. Saying things like that to someone that has a loved one that suffers is cold and insensitive to the fact that the persons loved one suffers, that should be obvious. I guess we should embrace our painful diseases and be glad that we have them instead of addiction, because we can go on to live full, meaningful lives as long as we don’t go down that road, RIGHT? I apologize for the volume of sarcasm in this comment, but it was better for me to post this than to throw stuff across the room and cuss like a sailor, as I wanted to when I read this.
when youre in your 60’s like me and these no one witch hunting us realizes life is wrapping up.I have led a very active life,now I have injuries that wont go away.Give me what I need and leave me alone.I’m hurting no one.